THE INTERNATIONAL ALLIANCE OF ALS/MND ASSOCIATIONS
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Main board summary at 2026-01-30
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| Name | ⚥ | Age in 2026 |
From | Until | Service years |
|
|---|---|---|---|---|---|---|
| 1 | Abrams, Wendy | F | 85 | 1999-03-29 | 2004-11-30 | 5.68 |
| 2013-03-05 | 2013-12-03 | 0.75 | ||||
| 2 | Alexander, Con | 61 | 1999-03-24 | 1999-03-29 | 0.01 | |
| 3 | Ali, David Imam | M | 67 | 2017-12-05 | 2023-12-01 | 5.99 |
| 4 | Aquino, Pablo Agustin | 53 | 2019-01-01 | 2024-12-31 | 6.00 | |
| 5 | Balas, Calaneet Hadassah | 51 | 2017-12-05 | 8.15 | ||
| 6 | Bedford, Jennifer (1971-02) | F | 55 | 2024-12-31 | 1.08 | |
| 7 | Bell, Steven Richard (1959-05) | M | 67 | 2010-12-08 | 2018-12-10 | 8.01 |
| 8 | Bench, Mary Ellen | F | 69 | 2025-01-01 | 1.08 | |
| 9 | Bestow, Robert | M | 70 | 2011-11-27 | 2017-12-05 | 6.02 |
| 10 | Birks, Carol Elizabeth | F | 70 | 2010-12-08 | 2017-12-05 | 6.99 |
| 11 | Blake, Andrew Julian | M | 62 | 1999-03-24 | 1999-03-29 | 0.01 |
| 12 | Blonk, Gorrit-Jan | 60 | 2015-12-08 | 2021-11-10 | 5.92 | |
| 13 | Bongioanni, Paolo | 63 | 2000-12-01 | 2005-12-05 | 5.01 | |
| 2006-11-27 | 2008-10-31 | 1.93 | ||||
| 14 | Cameron, David (1947-01) | M | 79 | 2005-12-05 | 2011-08-01 | 5.65 |
| 15 | Carmi, Efrat | 60 | 2012-12-01 | 2018-12-10 | 6.02 | |
| 16 | Cattani, Monica | F | 60 | 2008-11-18 | 2010-12-05 | 2.05 |
| 17 | Codini, Mauro | 80 | 1999-11-12 | 2000-08-04 | 0.73 | |
| 18 | David, Lindee Ellen | F | 70 | 2013-12-03 | 2014-06-16 | 0.53 |
| 19 | Deitch, Jeffrey | M | 69 | 2008-11-10 | 2013-04-05 | 4.40 |
| 20 | Feldman, Sara Marie | F | 62 | 2013-12-03 | 2019-12-16 | 6.03 |
| 21 | Fleeson, Andrew Hayes | M | 81 | 1999-03-29 | 2010-12-05 | 11.69 |
| 22 | Frost, Eithne | F | 80 | 2004-11-29 | 2005-09-30 | 0.84 |
| 23 | Gallienne, Mavis | F | 81 | 1999-03-29 | 1999-11-12 | 0.62 |
| 24 | Gilbert, Jane Hansen | F | 78 | 2011-09-01 | 2013-12-03 | 2.26 |
| 25 | Goldstein, Robert (1980-11) | M | 46 | 2016-12-04 | 2018-12-10 | 2.02 |
| 26 | Goldup, Nicholas Carl | M | 49 | 2019-01-01 | 2023-12-15 | 4.95 |
| 27 | Graham, Alan Philip | M | 79 | 2001-11-15 | 2010-12-05 | 9.05 |
| 28 | Groom, Mary Josephine | F | 72 | 1999-03-24 | 1999-03-29 | 0.01 |
| 29 | Harris, Angela (1966-05) | F | 60 | 2024-01-01 | 2.08 | |
| 30 | Harris, Rodney Neville | M | 73 | 1999-11-12 | 2008-10-31 | 8.97 |
| 31 | Heron, Diane Helen | F | 80 | 1999-03-29 | 2004-11-30 | 5.68 |
| 32 | Kawaguchi, Yumiko Shimada | 64 | 2008-10-31 | 2011-11-27 | 3.07 | |
| 33 | Kaya, Alper (1961-08) | 65 | 2012-12-01 | 2015-12-08 | 3.02 | |
| 34 | Kirkpatrick, Philip Duncan John | M | 62 | 1999-03-24 | 1999-03-29 | 0.01 |
| 35 | Kuo, Lung | 50 | 2021-11-10 | 2024-12-31 | 3.14 | |
| 36 | Lawson, Suzanne (1942-07) | F | 84 | 2000-12-01 | 2003-02-28 | 2.24 |
| 37 | Matland, Sharon | F | 79 | 2008-01-24 | 2011-07-29 | 3.51 |
| 38 | Moeller, Jette Gudrun Birgitta | F | 82 | 2006-11-27 | 2009-12-05 | 3.02 |
| 39 | Moore, Tammy (1970-08) | F | 56 | 2023-12-01 | 2.17 | |
| 40 | Moore, Tammy Lynn | F | 56 | 2015-12-08 | 2021-11-10 | 5.92 |
| 41 | Newhouse, Barbara | F | 68 | 2014-12-02 | 2017-12-05 | 3.01 |
| 42 | Pauls Backman, Andrea | F | 67 | 2019-12-01 | 2022-11-29 | 3.00 |
| 43 | Praznikar, Ales | 60 | 2008-12-01 | 2012-12-02 | 4.00 | |
| 44 | Qu, Ying (1979-10) | 47 | 2014-12-02 | 2020-11-19 | 5.97 | |
| 45 | Reviers, Evy | 39 | 2010-12-08 | 2016-12-04 | 5.99 | |
| 2017-05-12 | 2023-12-01 | 6.55 | ||||
| 2025-01-01 | 1.08 | |||||
| 46 | Rigby, Christine Margaret (1965-08) | F | 61 | 1999-03-24 | 1999-03-29 | 0.01 |
| 47 | Salas, Maria Teresa | F | 68 | 2011-11-27 | 2017-12-05 | 6.02 |
| 48 | Santos, Marcela | 37 | 2020-11-19 | 5.20 | ||
| 49 | Sigurdsson, Gudjon | 66 | 2005-12-05 | 2012-12-02 | 6.99 | |
| 2018-12-07 | 2024-12-31 | 6.07 | ||||
| 50 | Six-Spiritus, Marie Jeanne | F | 87 | 1999-04-23 | 2000-12-01 | 1.61 |
| 51 | Sostarko, Marija | 87 | 1999-03-29 | 2003-11-14 | 4.63 | |
| 52 | Spanfelt, Jens | 73 | 2009-12-05 | 2015-12-08 | 6.01 | |
| 53 | Stevic, Zorica | 67 | 2005-12-05 | 2008-10-31 | 2.90 | |
| 54 | Stockton, Craig William Francis | M | 63 | 2003-11-14 | 2008-10-31 | 4.96 |
| 2017-12-05 | 2021-02-11 | 3.19 | ||||
| 55 | Sullivan, Clare (1981-04) | F | 45 | 2025-01-01 | 1.08 | |
| 56 | Tellechea Rotta, Francisco | 58 | 2008-10-31 | 2011-11-27 | 3.07 | |
| 57 | Thomas, Gethin (1966-11) | 60 | 2023-12-01 | 2025-03-05 | 1.26 | |
| 58 | Tsai, Ching Piao | 72 | 1999-11-13 | 2007-11-28 | 8.04 | |
| 2011-11-27 | 2014-03-03 | 2.26 | ||||
| 59 | Turgeman, Sabine | 51 | 2022-11-29 | 2024-12-31 | 2.09 | |
| 60 | Uysal, Hilmi | 69 | 2021-11-10 | 2024-12-31 | 3.14 | |
| 61 | Weir, Andrew Ian | M | 79 | 1999-03-29 | 2004-11-30 | 5.68 |
| 62 | Yamada, Yohei (1977-07) | 49 | 2022-11-29 | 3.17 | ||
| 63 | Zuccarino, Riccardo | 50 | 2025-01-01 | 1.08 | ||
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