THE INTERNATIONAL ALLIANCE OF ALS/MND ASSOCIATIONS

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Snapshot date:
exclude unknown removal dates

Main board summary at 2026-01-30

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Name Age in
2026
From Until Service
years
1 Abrams, Wendy F 85 1999-03-29 2004-11-30 5.68
2013-03-05 2013-12-03 0.75
2 Alexander, Con 61 1999-03-24 1999-03-29 0.01
3 Ali, David Imam M 67 2017-12-05 2023-12-01 5.99
4 Aquino, Pablo Agustin 53 2019-01-01 2024-12-31 6.00
5 Balas, Calaneet Hadassah 51 2017-12-05 8.15
6 Bedford, Jennifer (1971-02) F 55 2024-12-31 1.08
7 Bell, Steven Richard (1959-05) M 67 2010-12-08 2018-12-10 8.01
8 Bench, Mary Ellen F 69 2025-01-01 1.08
9 Bestow, Robert M 70 2011-11-27 2017-12-05 6.02
10 Birks, Carol Elizabeth F 70 2010-12-08 2017-12-05 6.99
11 Blake, Andrew Julian M 62 1999-03-24 1999-03-29 0.01
12 Blonk, Gorrit-Jan 60 2015-12-08 2021-11-10 5.92
13 Bongioanni, Paolo 63 2000-12-01 2005-12-05 5.01
2006-11-27 2008-10-31 1.93
14 Cameron, David (1947-01) M 79 2005-12-05 2011-08-01 5.65
15 Carmi, Efrat 60 2012-12-01 2018-12-10 6.02
16 Cattani, Monica F 60 2008-11-18 2010-12-05 2.05
17 Codini, Mauro 80 1999-11-12 2000-08-04 0.73
18 David, Lindee Ellen F 70 2013-12-03 2014-06-16 0.53
19 Deitch, Jeffrey M 69 2008-11-10 2013-04-05 4.40
20 Feldman, Sara Marie F 62 2013-12-03 2019-12-16 6.03
21 Fleeson, Andrew Hayes M 81 1999-03-29 2010-12-05 11.69
22 Frost, Eithne F 80 2004-11-29 2005-09-30 0.84
23 Gallienne, Mavis F 81 1999-03-29 1999-11-12 0.62
24 Gilbert, Jane Hansen F 78 2011-09-01 2013-12-03 2.26
25 Goldstein, Robert (1980-11) M 46 2016-12-04 2018-12-10 2.02
26 Goldup, Nicholas Carl M 49 2019-01-01 2023-12-15 4.95
27 Graham, Alan Philip M 79 2001-11-15 2010-12-05 9.05
28 Groom, Mary Josephine F 72 1999-03-24 1999-03-29 0.01
29 Harris, Angela (1966-05) F 60 2024-01-01 2.08
30 Harris, Rodney Neville M 73 1999-11-12 2008-10-31 8.97
31 Heron, Diane Helen F 80 1999-03-29 2004-11-30 5.68
32 Kawaguchi, Yumiko Shimada 64 2008-10-31 2011-11-27 3.07
33 Kaya, Alper (1961-08) 65 2012-12-01 2015-12-08 3.02
34 Kirkpatrick, Philip Duncan John M 62 1999-03-24 1999-03-29 0.01
35 Kuo, Lung 50 2021-11-10 2024-12-31 3.14
36 Lawson, Suzanne (1942-07) F 84 2000-12-01 2003-02-28 2.24
37 Matland, Sharon F 79 2008-01-24 2011-07-29 3.51
38 Moeller, Jette Gudrun Birgitta F 82 2006-11-27 2009-12-05 3.02
39 Moore, Tammy (1970-08) F 56 2023-12-01 2.17
40 Moore, Tammy Lynn F 56 2015-12-08 2021-11-10 5.92
41 Newhouse, Barbara F 68 2014-12-02 2017-12-05 3.01
42 Pauls Backman, Andrea F 67 2019-12-01 2022-11-29 3.00
43 Praznikar, Ales 60 2008-12-01 2012-12-02 4.00
44 Qu, Ying (1979-10) 47 2014-12-02 2020-11-19 5.97
45 Reviers, Evy 39 2010-12-08 2016-12-04 5.99
2017-05-12 2023-12-01 6.55
2025-01-01 1.08
46 Rigby, Christine Margaret (1965-08) F 61 1999-03-24 1999-03-29 0.01
47 Salas, Maria Teresa F 68 2011-11-27 2017-12-05 6.02
48 Santos, Marcela 37 2020-11-19 5.20
49 Sigurdsson, Gudjon 66 2005-12-05 2012-12-02 6.99
2018-12-07 2024-12-31 6.07
50 Six-Spiritus, Marie Jeanne F 87 1999-04-23 2000-12-01 1.61
51 Sostarko, Marija 87 1999-03-29 2003-11-14 4.63
52 Spanfelt, Jens 73 2009-12-05 2015-12-08 6.01
53 Stevic, Zorica 67 2005-12-05 2008-10-31 2.90
54 Stockton, Craig William Francis M 63 2003-11-14 2008-10-31 4.96
2017-12-05 2021-02-11 3.19
55 Sullivan, Clare (1981-04) F 45 2025-01-01 1.08
56 Tellechea Rotta, Francisco 58 2008-10-31 2011-11-27 3.07
57 Thomas, Gethin (1966-11) 60 2023-12-01 2025-03-05 1.26
58 Tsai, Ching Piao 72 1999-11-13 2007-11-28 8.04
2011-11-27 2014-03-03 2.26
59 Turgeman, Sabine 51 2022-11-29 2024-12-31 2.09
60 Uysal, Hilmi 69 2021-11-10 2024-12-31 3.14
61 Weir, Andrew Ian M 79 1999-03-29 2004-11-30 5.68
62 Yamada, Yohei (1977-07) 49 2022-11-29 3.17
63 Zuccarino, Riccardo 50 2025-01-01 1.08

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